Friday, May 16, 2008

Voices from The Body Chronic--New Feature

I have decided to branch out.

I know that I'm not the only chronic body out there. In fact, I know The Body Chronic touches on many issues, not the least of which is fat acceptance. There are many that inspire me on a daily basis, including, but not limited to:


The list could probably go on forever. The point is that it's time to branch out and start cross-talking and really strengthening the network of support. There are probably more issues that touch on or relate to chronic illness and chronic pain than I've even begun to think of, so feel free to give me ideas.

If you are interested in guest blogging, leave a comment or e-mail me at thebodychronic@gmail.com.

(And to those listed above--I'm about to tag you in your comments to see if you're interested.)
Let's build this thing together!

Friday Chronic Roundup


I'm starting a new series. So often there are stories that don't necessarily call for a full commentary, but I'd like to post on here. From now on, those will be here on Fridays in the Friday Chronic Roundup.

If you have a story you'd like to submit, leave it in the comments.
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Basic Health and Chronic Illness Issues

Pelvic Floor/Interstitial Cystitis/Bladder/Vulvodynia Issues
Digestive/IBS Issues
Insulin Resistance/Diabetes/Glucose Issues

Daily Inspiration: 5/16/08


Most human beings have an almost infinite capacity for taking things for granted.
-Aldous Huxley

Thursday, May 15, 2008

Technorati claim

Technorati Profile

Wednesday, May 14, 2008

This seems like a no brainer...



but now there's research to back it up. Apparently having pelvic floor issues impacts a woman's libido.

(Sarcasm alert)

No crap! I thought I was the only one! Why wouldn't women with pain in their pelvis want to engage in intercourse? That's the real question!

(End of sarcasm)

PCOS Research Gets A Boost

The National Institutes of Health has awarded a grant to the Virgina Commonwealth School of Medicine to study PCOS in an interdisciplinary setting.

The five-year grant will support an interdisciplinary and translational research center in PCOS, making VCU one of only15 Specialized Cooperative Centers Program in Reproduction and Infertility Research (SCCPRIR) in the country.

“This research program initiative expands the existing PCOS program at VCU, allowing interdisciplinary and collaborative studies with partnering institutions, and will enhance our ability to bring research discoveries from the laboratory bench quickly to the clinical care of women with PCOS,” said John Nestler, M.D., vice chair of the Department of Internal Medicine and chair of the Division of Endocrinology and Metabolism at the VCU School of Medicine. Nestler, a pioneer in PCOS research, is the primary investigator for the project.

“VCU’s SCCPRIR program focuses on the use of genetics to identify risk for PCOS in an individual woman and pharmacogenomics, designed to identify the optimal treatment for an individual patient,” he said.

The SCCPRIR is administered by the Reproductive Sciences Branch of the NICHD, and provides funding for a limited number of research centers in the reproductive sciences. The purpose of these centers is to provide an arena for multidisciplinary interactions among basic and clinical scientists interested in establishing high-quality programs in reproduction and infertility research. The centers also serve as national resources for the training and career development of new scientists electing to pursue research in high priority areas of reproduction and infertility research.

Another good vote for the good fight.

Daily Inspiration: 5/14/08


The most important thing in communication is to hear what isn't being said.
- Peter Druker

Tuesday, May 13, 2008

Daily Inspiration: 5/13/08


Many men go fishing all of their lives without knowing that it is not fish they are after. -Henry David Thoreau

Monday, May 12, 2008

Happy CFS and Fibromyalgia Awareness Day


Fighting Fatigue reminds me of this important day.

Daily Inspiration: 5/12/08


Human beings, vegetables, or cosmic dust - we all dance to a mysterious tune, intoned in the distance by an invisible piper. -Albert Einstein

Friday, May 9, 2008

Change of Pace

As I have mentioned previously, I had been seeing a new endocrinologist recently. At first I was excited by this prospect, but my faith in the relationship had been tested along the way to the point where I wasn't sure he was the doctor for me. It took me some time, but I knew from the first meeting that this would be a relationship that, at the very least, would take some work.

At our last meeting I was less than encouraged. Though he put me on Byetta as requested, and supported the decision, there was still this nagging feeling that there wasn't the right mix involved. Here were my warning signs (some of you may relate to these things):
1. He advocated very early on (early in the first appointment) that I should consider weight loss surgery. (WLS)
2. He wanted to see me every 2-3 weeks.
3. After the initial 2-3 weeks when I did not lose weight, I was made to feel as if this were some grave dissapointment.
4. He wasn't as concerned about my lifestyle choices as he was about the pure numbers--weight, insulin levels, glucose levels, etc. Nor did he ever put any effort into discussing the lifestyle choices which would affect those numbers such as food choices, exercise levels, other conditions, etc.
5. He did not seem to take into account my other chronic illnesses in any of our discussions.

Nevertheless, I gave it a good try--even though his office was at least 45 minutes away from work or home for me. I have often had to cancel appointments for this reason. But I thought there weren't many options.

Somehow, I came across another name, a woman no less (which I prefer for several reasons) who was in between home and work. I met with her this morning and she decided to give the Byetta another try (even though it was helping, I had decided to give it a rest until I made a decision about the direction, if any, I wanted to pursue with my IR/PCOS). She also kept me on the 2000 mg of Glumetza. Here are the things that made me feel more comfortable with her and her decisions:
1. She did not mention drastic (and frankly dangerous) measures such as WLS.
2. Although she noted that weight reduction is critical for PCOS, especially if I ever want to conceive, she did not push that as the be-all/end-all.
3. She listened to me and did a thorough background history.
4. She advocated lifestyle changes.
5. She advocated me tracking my blood glucose levels fairly regularly to ensure that I wasn't treading on the line between IR and Type 2 Diabetes.
6. She understood the connection between my weight loss and eventual regain due to other chronic conditions.
7. She made the next appointment 3 months out--time for me to actually make a reasonable difference in my life.

I am optimistic about these changes. More importantly, I am, once again, comfortable with the care I am receiving. The thing is that when you have a chronic illness, you have a greater awareness of the quality of the care you receive. In the same vein, you are in greater need of a greater level of care. If a doctor does not take into consideration all of the conditions that your body has (whether they be illnesses or just facts of your life), then you are going to be boxed into certain failure in the quest to live a better life.

Not only that, but I realized the weight that was lifted off of my shoulders by having a positive experience. Granted, my weight was up from my normal weight and I'm not feeling myself all over, but for the first time in a long time I felt empowered to do something about it, instead of hounded. As opposed to feeling that I can never please my medical professional, I feel like my medical professional is trying to help me please myself.

It's a start, but it's a great feeling.

Pelvic Pain Matters


Through my subscription to one of many Yahoo groups about pelvic pain and/or vulvodynia (I don't remember which one--sorry!) I came across this blog.

Pelvic Pain Matters is a blog devoted to pelvic floor dysfunction (PFD)...something that is often talked about here. From what I can tell, this is the first blog devoted to PFD, so I'm glad to see it out there. There are a lot of women suffering from PFD that don't have many resources and I'm glad to see another one out there--especially one that specializes in PFD alone.

Another link for the support section...

Daily Inspiration: 5/9/08 (and 5/8/08)


“If we are on a path of getting nowhere fast, technology is allowing us to get nowhere faster and faster." John Renesch

(in honor of my new BlackBerry 8820--the reason I was blog-deficient yesterday)



Wednesday, May 7, 2008

Daily Inspiration: 5/7/08


The power to question is the basis of all human progress. -Indira Gandhi

Tuesday, May 6, 2008

Daily Inspiration: 5/7/08


The worst guilt is to accept an unearned guilt. -Ayn Rand